DIRECTIVES FOR HEALTHCARE
The Life-Affirming Medical Proxy (LAMP) was developed by HALO in response to calls from people seeking HALO’s help to obtain a medical power of attorney (a.k.a. a durable power of attorney for health care) in emergency situations. The LAMP document can be readily downloaded in such situations. The American Bar Association advises, “Even if your state requires a specific form, doctors have a legal obligation to respect your clearly communicated treatment wishes in any manner or form expressed, as long as the wishes are medically appropriate.” (Sabatino, Charles. “Myths and Facts About Health Care Advance Directives.” BIFOCAL, vol. 37, no. 1, 2015, pp. 6–9.) Accordingly, regardless of where you reside, a signed and properly witnessed LAMP document should be accepted as a valid expression of your wishes. Read more…
Download the Advance Directive Comparison Fact Sheet (PDF)
The Uniform Anatomical Gift Act was revised in 2006 and most states have adopted it. Everyone who has not explicitly refused to be an organ donor is now considered a “prospective donor.”
This means that, if you are “at or near death,” your hospital must notify an Organ Procurement Organization (OPO). While the OPO searches for a “reasonably available” family member or other person who can legally consent or refuse to donate your organs, the medical team can treat you like a donor, subjecting you to medical procedures—not beneficial to you—solely to make certain your organs are in tip-top condition for the potential recipient.
Before organ transplantation was possible, physicians waited long enough to be certain that circulatory and respiratory functions had irreversibly ceased. Death was declared only when there were no vital signs—the body was cold, blue and stiff.
Today, however, in the haste to procure vital organs before they begin to deteriorate due to loss of circulation, death is often declared to enable organ transplantation, not to protect the donor from a death-dealing mistake.
Every state maintains an Organ Donor Registry listing people who have agreed to be organ donors, either on a driver’s license application or by signing an organ donor card. These state registries are readily accessed by Organ Procurement Organizations (a.k.a. Organ Donor Networks).
Sign and carry with you an I REFUSE TO BE AN ORGAN DONOR wallet card. To request a wallet card, email firstname.lastname@example.org
The wiser choice: a Medical Power of Attorney
A much better choice is a Medical Power of Attorney in which you appoint a trusted family member or friend to be your “agent” (called a “proxy” in some state advance directive laws). Your agent will make medical decisions for you in the moment of need if you are unable, either temporarily or permanently, to do so for yourself.
PART TWO: THE DANGEROUS POLST FORM
By Julie Grimstad, Board President
Physician Orders for Life-Sustaining Treatment (POLST) is an advance directive form used extensively throughout the United States. POLST has many different names and acronyms, such as Medical Orders for Scope of Treatment (MOST), Clinician Orders for Life-Sustaining Treatment (COLST), and Transportable Physician Orders for Patient Preferences (TPOPP). These forms differ, and some are worse than others, but all of them can be used to encourage refusal of life-saving and life-preserving treatment and care, resulting in avoidable deaths.
A brightly colored (usually neon pink, green or yellow) form that is very visible in a patient’s medical chart, POLST reduces complicated medical decisions to a “check the box” format. Trained “facilitators” (sometimes with little or no medical expertise) ask patients questions and check boxes indicating whether they do or do not want cardiopulmonary resuscitation (CPR), a ventilator, antibiotics, IV fluids, tube-feeding, and various other medical interventions. After filling out a POLST with a patient, the facilitator presents it to a doctor or nurse practitioner (NP) for a signature. Once signed, this unusual advance directive becomes medical orders that can go into effect even when a patient is fully capable of making his or her own medical decisions and/or does not have a terminal condition.
POLST medical orders travel with the patient from one healthcare setting to the next, and even home to be followed by EMTs in an emergency. Using medical orders that were written weeks, months or years earlier is not sound medical practice.
Tilted toward refusal of treatment
POLST facilitators follow a script according to which they present treatment and care options as if all medical decisions are morally neutral.
The Respecting Choices program distributes fact sheets for POLST facilitators to use to educate patients. The “Long-Term Tube Feeding Facts” sheet concludes, “Whatever you decide, plans can be made to follow your wishes.” It does not explain what those ”plans” might include, so I will. When tube-feeding is withheld from patients who are not otherwise dying (hence the word “long-term”), they will be given “comfort care” which often involves sedating patients to unconsciousness to prevent them from experiencing the pains of thirst and hunger as they die of dehydration. This is a form of euthanasia, which is both unethical and immoral.
Patients answering POLST questions may not be aware that, even if they could recover, treatments they refuse will not be provided and they could die as a result. What if an elderly person is in an accident? Will he be given the life-saving treatment he would probably want in this situation? Or will he be denied it because of some boxes checked by a POLST facilitator?
The way questions are phrased can manipulate patients’ responses. For example, a facilitator may ask, “Do you want comfort care? Do you want us to focus on keeping you comfortable?” The patient says, “Yes of course,” not realizing that this answer will be interpreted to mean, “Stop efforts to treat my illness and only provide comfort measures.”
The POLST form is designed for only one thing—refusal of treatment. A typical POLST form states, “Any section not completed implies full treatment for that section.” Therefore, if a person wants full treatment, a POLST is pointless.
A cost-saving strategy
John M. Haas, president of the National Catholic Bioethics Center (NCCB), in a letter to the Secretaries of Health and Human Services and the Veterans Administration regarding POLST, dated June 7, 2017, noted that “evidence suggests that such approaches have more to do with cost saving than the protection of informed consent. In fact, the very means by which costs will be saved is the premature death of a patient through the denial of basic care.”
Listening to POLST’s advocates leads to the conclusion that POLST is indeed a strategy to cut spending on medical care for the most vulnerable patients. For example:
POLST’s reach is expanding
According to the National POLST Paradigm website (polst.org), “The POLST form is for seriously ill patients for whom their physicians would not be surprised if they died in the next year, not for all patients.” Despite this qualification, POLST’s reach is expanding.
Case in Point: Jo Tolck, Vice President of the HALO Board of Directors, received a call from a woman in Minnesota who had been given a POLST form at her doctor’s office when she was there for a procedure necessary to have a prescription renewed. She reported being strongly encouraged to sign the POLST form. However, having read Informed: A guide for critical medical decisions, she knew this was not a good idea and was incensed at the pressure being put on her to sign the POLST. The staff member finally asked her to take it home and think about it.
Case in Point: An attorney in Wisconsin, who has “heard many stories like this,” reported: A woman in her forties came to the Emergency Department at a local hospital. She was in such respiratory distress that she could not talk. While waiting for a doctor, she was approached by the unit clerk who wanted to complete a POLST with her. The nurse, who had brought the woman to the hospital, intervened and stopped the POLST process. The ward clerk said it was their policy to do a POLST on any one with respiratory problems. The woman’s problem was an allergic reaction to a new medication. An Epi-Pen injection completely restored her to health.
I have also received reports from credible sources that some nursing homes require every resident to have a POLST, even though many people live in nursing homes for several years or more.
POLST is a uniquely dangerous advance directive
No other type of advance directive requires a healthcare provider’s signature. Every other advance directive requires the signatures of the person making the directive and witnesses, yet many POLST forms do not require either. For instance, the La Crosse Area (Wisconsin) POST merely recommends the signature of the patient or surrogate and no witnesses are required. Incredibly, this POST form permits a physician or NP to initial a box “to verify that the patient or surrogate consent to these orders but was unwilling or unable to sign.” If a person was unwilling to sign a document, it is doubtful that the person consented to it. Without witnesses, how can we prevent fraud and protect patients from being coached or coerced to refuse treatment?
As a routine part of a visit to the doctor, Medicare started paying for conversations about “advance care planning” in January 2016. The goal to is get patients to fill out advance directives such as a POLST.
Advice: According to the National POLST website, completing a POLST form is always voluntary. Do not allow anyone to push you into it. When approached with a POLST form, firmly state, “I have a Medical Power of Attorney for Health Care which will go into effect if ever I need my agent to make decisions for me. Until such time, I want to discuss my condition and treatment options with my attending physician as needed. Please respect my wishes.”
My mom has stage 4 cancer, so I took one of the American Life League Loving Wills I got several years ago and read her the form about food and water and asked if she wanted to sign one so they will have to give her nutrition. She said she wanted to. My daughter is a notary, and she came to the hospital and read over the form. She said it wasn’t sufficient because it didn’t go into detail about DNR (Do Not Resuscitate) order. She notarized it anyway, but I need your input to make sure this is all we need.
Many people, often under the guidance of their lawyer, have living wills which specify what type of medical treatment they wish to have or forego should they have a terminal illness. There are several problems with this. First, the living will is a rather rigid document, often prepared years prior to the occurrence of the patient’s first medical illness, after which circumstances and opinions have often changed. Second, many physicians interpret a living will as a “do not resuscitate (DNR)” order, so that, if you are admitted for a non-terminal illness, you could be categorized as a DNR patient, when that may not be your wish. Third, patients with living wills, in general, will get less aggressive hospital treatment. My advice is to speak with a trusted friend or family member and make them your power of attorney for healthcare decision maker instead of obtaining a living will.
When it is directed by a dying patient or the patient’ s proxy that a gravely burdensome treatment will not be administered, a specific order for that specific non-treatment must be written. Written orders must be as precise as possible. “Do Not Resuscitate” or “No Code” are examples of ambiguous orders widely accepted by physicians and courts. Do these orders mean no maintenance of an airway, or no ventilation, or no cardiac resuscitation, as well as no new or additional therapy? Furthermore, in light of the weakness of human nature, once the course has been plotted by a DNR (“Do Not Resuscitate”) or a “No Code” order, there is a tendency to preclude, eliminate, or reduce other kinds of “ordinary” treatments, such as visits by physicians and care given by nurses and others. Broad orders of “Do Not Resuscitate” (DNR) or “No Code” must be avoided. At no other time in medicine are treatment-orders that are broad and non-specific considered to be within the standard of care.
Most states do not require a particular form, but they do have witnessing requirements or other special signing formalities that should be followed.Even if your state requires a specific form, doctors have a legal obligation to respect your clearly communicated treatment wishes in any manner or form expressed, as long as the wishes are medically appropriate. https://www.americanbar.org/groups/law_aging/publications/bifocal/vol_37/issue_1_october2015/myths_and_facts_advance_directives/
1 (888) 221-HALO (4256)
7301 Bass Lake Rd
Minneapolis, MN 55428
Healthcare Advocacy and Leadership Organization is a 501(c)(3) and all donations are tax deductible to the full extent of the law.